tag:blogger.com,1999:blog-39754299954380317322024-03-08T05:08:59.146-05:00Northeast Ohio CeliacsThis site is run by the Akron Celiac Support Group to share information between the various Celiac Support Groups in Northeast Ohio, and the rest of the world.
The Akron Support group is Chapter 111 of the Celiac Sprue Association combined with R.O.C.K. We meet at Akron Children's Hospital on the Second Sunday of each month (except May) at 2 p.m.Theresehttp://www.blogger.com/profile/05345077064936460568noreply@blogger.comBlogger65125tag:blogger.com,1999:blog-3975429995438031732.post-38376799769543007772011-07-01T22:52:00.002-04:002011-07-01T22:58:31.187-04:00Dr Owen Tully speaking on Celiac Disease gluten free samples provided by Nature's Bin<strong>Local Gastroenterologist to Discuss Latest Info on Celiac Disease July 12</strong>You’ve may have seen the news stories about celiac disease and you’ve probably seen the “gluten-free” labels on some of your favorite Nature’s Bin products. If you’ve got questions about celiac disease and gluten free diets, join Dr. Owen Tully, a gastroenterologist from North Shore Gastroenterology to learn more!<br /><br /><strong>Dr. Tully will talk about celiac disease</strong>, its symptoms, how it is diagnosed and the other diseases as which it may masquerade. Nature’s Bin will provide samples of many of the tasty gluten-free products available at the store.<br /><br />If you are curious, join Dr. Tully and Nature’s Bin to hear the most up-to-date information about celiac disease and gluten-free food choices.<br /><br />When<br />Tuesday, July 12th, 6:00 p.m.<br /><br />Where<br />Lakewood Congregational Church 1375 West Clifton<br />Lakewood, Ohio<br /><br />How<br />Dr. Tully’s presentation is free but registration is required. Register at Eventbrite.com or with a Nature’s Bin cashier.<br /><br />Mary Johnson<br /><br />Nature's Bin<br />18120 Sloane Avenue<br />Lakewood, OH 44107<br />Phone: 216.521.4600<br />www.naturesbin.comTheresehttp://www.blogger.com/profile/05345077064936460568noreply@blogger.com1tag:blogger.com,1999:blog-3975429995438031732.post-13770370063893520792011-03-02T23:07:00.004-05:002011-03-03T00:00:52.808-05:00Celiac Disease Conference, Saturday March 5, 2011Celiac Disease Conference at Akron Children's Hospital will be on Saturday March 5, 2011<br /><br />The conference is nearly filled. You must be preregistered to attend. If you have not registered email Therese at <a href="mailto:tsemonin1@neo.rr.com">tsemonin1@neo.rr.com</a> to see if there is still room.<br /><br /><strong>Schedule of the day</strong><br />Celiac Disease Conference and Vendor Fair<br />Saturday March 5, 2011<br /><br />Vendors 9:00 a.m. – 1:30 p.m.<br /><br />Timeline Lobby and Sherman Auditorium Lobby<br /><br />Speaker Schedules<br /><br />Adult Program Sherman Auditorium<br />11:00 Opening Remarks<br />11:10 – 12:15 Dr Alessio Fasano <br />12:15 – 1:00 Deititian Trisha Lyons <br />1:00 – 1:30 Break<br />1:30 -2:15 Dr. Costas Kefalas<br />2:15 – 3:00 Dr Cydney Fenton<br />3:00 – 3:15 Break<br />3:15 – 4:00 Pharmacist Steve Plogsted<br /><br />Tot and Parent Program<br />11:00 Opening Remarks Sherman Auditorium<br />11:10 – 12:15 Dr Alessio Fasano<br /><br />12:15 move to Café A<br />12:15 – 12:45 Visit vendor fair with parents, without crowd<br />12:45 – 1:45 Akron Zoo experience animals that eat gluten free<br />1:45 – 2:15 Questions and Answers with Dr. Fasano, Dr. Fenton and Dr. Smith<br />2:15 – 3:00 Dietitian Trisha Lyons Basics of the gluten free diet for your child<br />3:00 – 3:45 Bake and Take provided by Food-Tek<br />3:45 Closing and door prizes<br /><br />School Age Program Café B<br />11:00 parent sign in. Children can not leave the area without an adult. If a parent<br />11:15 – 11:45 Visit the vendor fair without a crowd<br />11:45- 12:45 Akron Zoo Experience, meet animals that eat gluten free<br />1:00 – 1:30 Break with Parents<br />1:30 – 2:15 Bake and Take by Food-Tek <br />2:15 – 3:00 Questions and answers with Dr. Fasano and Dr. Smith<br />3:00 Parent check in<br />3:15 – 3:45 Gluten free food with Dietitian Trisha Lyons <br />3:45 go to Auditorium to meet up with parents, Door prizes and closing @ 4<br /><br /><br />We would like to thank the following for their support of this conference<br /><br /><br />Akron Children’s Hospital Diabetes and Endocrinology Department<br />More than Gourmet www.morethangourmet.com <br />Mustard Seed Market and Café www.mustardseedmarket.com<br />CSA (Celiac Sprue Association) www.csaceliacs.org/<br />Against the Grain www.againstthegrainslc.com <br />Kathy's Creations, 866-821-8183<br />Bob's Red Mill www.bobsredmill.com/<br />Pamela's Products www.pamelasproducts.com/<br />Living Without Magazine www.livingwithout.com/welcome.htm<br />Wheat-free Gluten-free Cookbooks www,gfbooks.homestead.com<br />Katz Gluten Free www.katzglutenfree.com <br />Shabtai www.shabtai-gourmet.com <br />Gluten Free Bakes <br />Lasantti http://lasanttifoods.com <br />Celiac Disease Foundation www.celiac.org <br />Bakery on Main www.bakeryonmain.com <br />Earth Fare www.earthfare.com<br />www.WeedyWays.com / www.WatkinsOnLine.com/LynnMcGinnis<br />Udi’s www.udisfood.com <br />Chebe www.chebe.com <br />Food-Tek www.foodtek.com <br />Amy’s www.amyskitchen.com <br />Cecelia’s Marketplace www.cecelia’smarketplace.com <br />National Foundation for Celaic Awareness<br />Celiac Disease Foundation<br />R.O.C.K.<br />Joan’s Gluten free Bakes www.gfgreatbakes.com <br />Rudi’s www.rudisbakery.com <br />Dave and Jan Budai<br />Howard and Margaret Palmer<br />John and Therese Semonin<br />Lynn McGinnis<br />Cindy Koller-Kass<br />Mark and Kathy Walters<br />Esther Posen<br />Sue Krznarik<br />Kendall SmithTheresehttp://www.blogger.com/profile/05345077064936460568noreply@blogger.com0tag:blogger.com,1999:blog-3975429995438031732.post-61854033219115755442011-03-02T06:59:00.002-05:002011-03-02T07:04:55.153-05:00Celiac Disease Conference, Saturday March 5, 2011 at Akron Children's HospitalPreregistration is required for this conference. We still have a few spaces left. If you are interested please email Therese at <a href="mailto:tsemonin1@neo.rr.com">tsemonin1@neo.rr.com</a><br /><br />Schedule of events for<br /><strong>Celiac Disease Conference and Vendor Fair<br />Saturday March 5, 2011<br /></strong><br /><strong>Vendors 9:00 a.m. – 1:30 p.m</strong>.<br /><br />Timeline Lobby and Sherman Auditorium Lobby<br /><br /><strong>Speaker Schedules<br /></strong><br /><strong>Adult Program</strong> Sherman Auditorium<br />11:00 Opening Remarks<br />11:10 – 12:15 Dr Alessio Fasano<br />12:15 – 1:00 Deititian Trisha Lyons<br />1:00 – 1:30 Break<br />1:30 -2:15 Dr. Costas Kefalas<br />2:15 – 3:00 Dr Cydney Fenton<br />3:00 – 3:15 Break<br />3:15 – 4:00 Pharmacist Steve Plogsted<br /><strong><br />Tot and Parent Program<br /></strong>11:00 Opening Remarks Sherman Auditorium<br />11:10 – 12:15 Dr Alessio Fasano<br /><br />12:15 move to Café A<br />12:15 – 12:45 Visit vendor fair with parents, without crowd<br />12:45 – 1:45 Akron Zoo experience animals that eat gluten free<br />1:45 – 2:15 Questions and Answers with Dr. Fasano, Dr. Fenton and Dr. Smith<br />2:15 – 3:00 Dietitian Trisha Lyons Basics of the gluten free diet for your child<br />3:00 – 3:45 Bake and Take provided by Food-Tek<br />3:45 Closing and door prizes<br /><br /><strong>School Age Program Café B<br /></strong>11:00 parent sign in. Children can not leave the area without an adult. If a parent<br />11:15 – 11:45 Visit the vendor fair without a crowd<br />11:45- 12:45 Akron Zoo Experience, meet animals that eat gluten free<br />1:00 – 1:30 Break with Parents<br />1:30 – 2:15 Bake and Take by Food-Tek<br />2:15 – 3:00 Questions and answers with Dr Julie Smith<br />3:00 Parent check in<br />3:15 – 3:45 Gluten free food with Dietitian Trisha Lyons<br />3:45 go to Auditorium to meet up with parents, Door prizes and closing @ 4<br /><br /><br /><br /><strong>We would like to thank the following for their support of this conference<br /></strong><br /><br />Akron Children’s Hospital Diabetes and Endocrinology Department<br />More than Gourmet <a href="http://www.morethangourmet.com/">http://www.morethangourmet.com/</a><br />Mustard Seed Market and Café <a href="http://www.mustardseedmarket.com/">http://www.mustardseedmarket.com/</a><br />CSA (Celiac Sprue Association) <a href="http://www.csaceliacs.org/" target="_blank">www.csaceliacs.org/</a><br />Kathy's Creations, 866-821-8183<br />Bob's Red Mill <a href="http://%20www.bobsredmill.com/" target="_blank">http://%20www.bobsredmill.com/</a><br />Pamela's Products <a href="http://www.pamelasproducts.com/" target="_blank">www.pamelasproducts.com/</a><br />Living Without Magazine <a href="http://%20www.livingwithout.com/welcome.htm" target="_blank">http://%20www.livingwithout.com/welcome.htm</a><br />Wheat-free Gluten-free Cookbooks <a href="http://www.gfbooks.homestead.com/" target="_blank">www,gfbooks.homestead.com</a><br />Katz Gluten Free <a href="http://www.katzglutenfree.com/">http://www.katzglutenfree.com/</a><br />Shabtai <a href="http://www.shabtai-gourmet.com/">http://www.shabtai-gourmet.com/</a><br />Gluten Free Bakes<br />Pamela’s <a href="http://www.pamelasproducts.com/">http://www.pamelasproducts.com/</a><br />Celiac Disease Foundation <a href="http://www.celiac.org/">http://www.celiac.org/</a><br />Bakery on Main <a href="http://www.bakeryonmain.com/">http://www.bakeryonmain.com/</a><br /><br />Udi’s <a href="http://www.udisfood.com/">http://www.udisfood.com/</a><br />Chebe <a href="http://www.chebe.com/">http://www.chebe.com/</a><br />Food-Tek <a href="http://www.foodtek.com/">http://www.foodtek.com/</a><br />Amy’s <a href="http://www.amyskitchen.com/">http://www.amyskitchen.com/</a><br /><br />Dave and Jan Budai<br />Howard and Margaret Palmer<br />John and Therese Semonin<br />And Lynn McGinnis<br />And Cindy Koller-Kass<br />Mark and Kathy Walters<br />Esther Posen<br />Sue Krznarik<br />Kendall SmithTheresehttp://www.blogger.com/profile/05345077064936460568noreply@blogger.com1tag:blogger.com,1999:blog-3975429995438031732.post-91375859088714206262011-02-25T10:50:00.003-05:002011-02-27T22:12:30.890-05:00Vendors and Donors for the Celiac Disease Conference, Saturday March 5, Akron Children's HospitalVendors for the Conference include:<br /><br />Mustard Seed Market and Cafe<br />Connie Sarros Gluten Free Cookbooks<br />More Than Gourmet<br />Against the Grain<br />Cecelia's Marketplace<br />The Diabetes and Endocrinology Department at Akron Children's Hospital,<br />Various Celiac Support Groups from the surrounding area<br />The Center for Celiac Research, University of Maryland<br /><br /><br /><br />Donors that are sending us products and flyers include:<br /><br />Weedy Ways<br />Katz Gluten Free<br />Living Without Magazine<br />Shabtai<br />Gluten Free Bakes<br />Pamela's<br />Bakery on Main<br />Udi's<br />Bob's Red Mill<br />Chebe<br />Celiac Spprue Association<br />Celiac Disease Foundation<br />National Foundation for Celiac AwarenessTheresehttp://www.blogger.com/profile/05345077064936460568noreply@blogger.com1tag:blogger.com,1999:blog-3975429995438031732.post-98921491941475982011-02-22T13:30:00.002-05:002011-02-22T13:37:13.631-05:00Vendors and Donors for the March 5, 2011 Celiac Disease ConferenceThe following vendors are either going to be present at the vendor fair on March 5 at Akron Children's Hospital or have sent us items to place in goodie bags that will be given to each registered participant.<br /><br />The Diabetes and Endocrinology Department of Akron Children's Hospital<br />More than Gourmet<br />Bakery on Main<br />Katz Gluten Free<br />Food-Tek<br />Shabtai<br />Connie Sarros<br />Gluten Free Bakes<br />Pamela's<br />Celiac Disease Foundation<br />National Foundation for Celaic Awareness<br />Celiac Sprue Association<br />Udi's<br />Mustard Seed Market<br />Bob's Red Mill<br />Chebe<br />The support groups of the surrounding areaTheresehttp://www.blogger.com/profile/05345077064936460568noreply@blogger.com0tag:blogger.com,1999:blog-3975429995438031732.post-70456270117765689092011-02-21T15:42:00.002-05:002011-02-21T15:45:58.222-05:00Lunch options for the Celaic Disease Conference at Akron Children's Hospital, March 5, 2011The following menu items are available for purchase at the <strong>Kid's Cafe</strong> at Akron Children's Hospital on the day of the conference. They begin serving lunch at 10:30 a.m. <br /><br />Gluten Free Items in the Kids Café <br />March 5, 2011<br /><br /><br />Entrée<br />Lemon Baked Fish<br />Chicken Cacciatore<br />Brown Rice<br />Steamed Vegetable of the Day<br /><br />Snack Items<br />Tortilla Chips<br />Fritos<br />String Cheese<br />Gluten Free Bagels<br />Packaged Cheese Slices<br />Kozy Shack Sugar Free Pudding<br />All Fruits<br />Frozen yogurt<br />All Juices, Milk, and Soda<br />Slushies<br /><br />Grill<br />Hamburger<br />Grilled Chicken<br />French Fries<br /><br /><br /><br />**Gluten free white bread, and hamburger buns will be available at the grill and main course areas by request**Theresehttp://www.blogger.com/profile/05345077064936460568noreply@blogger.com0tag:blogger.com,1999:blog-3975429995438031732.post-85964996773332952492011-02-18T18:10:00.002-05:002011-02-18T18:22:20.899-05:00Lunch at the Celiac Disease Conference, Akron Children's Hospital, March 5, 2011If you have not yet signed up for the Akron Celiac Disease Conference please do so soon. It is just 2 weeks away!<br /><br />Speakers will be Dr. Alissio Fasano of the Celiac Disease Research Center in Maryland, Dr Costas Kefalas of Akron Digestive Disease Consultants, Dr Cydney Fenton of Akron Children's Hospital Diabetes and Endocrinology Department, Dr Julie Smith of Akron Children's Hospital, Dietitian Trisha Lyons of Metro Health Medical Center and Pharmacist Steve Plogsted of Nationwide Children's Hospital in Columbus.<br /><br />In addition to the speaker program for adults we will have a children's program and a special program for parents and tots. The tot and children's activities will include a Bake and Take provided by Food-Tek, A visit from Akron Zoo with animals who eat gluten free, and more<br /><br />We will have a small vendor fair before the conference and goodie bags for each person who attends.<br /><br />Lunch is not included in the price of attending. The Hospital Cafeteria will be making 2 special gluten free lunch entrees and have gluten free bread available that day. A list of all of their gluten free items will be available the morning of the conference.<br /><br />For more information read down through other postings or contact Therese at <a href="mailto:tsemonin1@neo.rr.com">tsemonin1@neo.rr.com</a>Theresehttp://www.blogger.com/profile/05345077064936460568noreply@blogger.com0tag:blogger.com,1999:blog-3975429995438031732.post-1349855087943487992011-02-15T23:00:00.002-05:002011-02-15T23:19:02.565-05:00Celiac Disease Conference, Saturday March 5, Akron Children's HospitalTime to get your registration in for the Celiac Disease Conference at Akron Children's Hospital.<br /><br />The program includes a session for adults, one for school age children, and one specially designed for toddlers and parents. We have cancelled the teen portion of this years program due to lack of participants.<br /><br />Celiac Disease Conference and Vendor Fair<br />Saturday March 5, 2011<br /><br />Keynote Speaker: Dr. Alessio Fasano<br />of the University of Maryland Center for Celiac Research<br /><br />Additional speakers include:<br />Dr. Cydney Fenton of Akron Children’s Hospital Diabetes and Endocrinology<br />Dr. Costas Kefalas, Akron Digestive Disease Consultants,<br />Dietitian Trisha Lyons, Celiac Dietitian of Metro Health<br />Pharmacist Steve Plogsted, Nationwide Children’s Hospital<br /><br />At this event we will have<br />adult, children and parent and tot programs and a small vendor fair. Children’s programs will include hands on activities.<br /><br />The event cost does not include lunch. The hospital cafeteria will have a gluten free entree and gluten free salad entree available for purchase on conference day.<br /><br />Sponsored by<br />The Celiac Support Groups of Northeast Ohio<br /><br />Hosted by:<br />Akron Celiac Support Group, CSA Chapters 50 & 111&<br />Akron Children’s Hospital Center for Diabetes & Endocrinology<br /><br /><br />Akron Children’s Hospital – Sherman Auditorium<br />1 Perkins Square<br />Akron, OH<br /><br /><br />Registration Form<br /><br />Celiac Disease Conference and Vendor Fair<br />Saturday March 5, 2011<br /><br /><br />Saturday March 5, 2011<br />Adult Program, School Age Children Program<br />11:00 noon – 4:30 p.m.<br />Parent and Child Program for Preschoolers and Young Children<br />11:00 noon – 3:00 p.m.<br />Vendors<br />9:00 a.m. - 1:30 p.m.<br /><br /><br />Family Name ___________________________________<br /><br />$ 15 for each adult and<br />$10 for each child.<br />Make Checks payable to: Celiac Disease Conference CSA 111<br /><br />Adults___,<br />School age (6-12) _____<br />Preschoolers _____<br />(Every preschool child must be accompanied by an adult for the entirety of their program. That adult does not pay to attend with their child.)<br /><br />Teens (13-adult) Teen program has been cancelled for this event due to small number interested. Teens are welcome to join the adult group if they wish. We will be having a teen outing at a later date.<br /><br />Total number of family members registering______________<br /><br />Total enclosed $ ___________<br /><br />Please list first names and age groups for each family member below.<br />If you would like a confirmation that your registration has arrived please list your email or phone number clearly below.<br /><br />Make checks payable to Akron Celiac Support Group #50.<br />Mail to:<br />Celiac Disease Conference, Attention Esther<br />640 Fairhill Drive<br />Akron, Ohio 44313<br /><br />See you on March 5th!<br /><br />If you have additional questions you can reach Therese at tsemonin1@neo.rr.comTheresehttp://www.blogger.com/profile/05345077064936460568noreply@blogger.com0tag:blogger.com,1999:blog-3975429995438031732.post-28334528191798673082011-02-10T06:43:00.002-05:002011-02-10T06:49:28.148-05:00February Celiac Support Group meeting<br /><br />Sunday, February 13, 2011<br /><br />Akron Children's Hospital<br /><br />Timeline Lobby<br /><br />2:00 - 3:30<br /><br />We will hold our annual gluten free bread baking contest. You do not need to bake to attend. We have just 3 catagories this year. 1. Beginner breads from mix, 2. Slightly talented breads from published recipies, 3. Original recipies<br /><br />Akron Children's Hospital is also holding their radiothon this weekend. Parking may be slightly more crowded. <br /><br />The conference is less than a month away. Bring your registrations to the meeting, or mail them in to Esther soon.Theresehttp://www.blogger.com/profile/05345077064936460568noreply@blogger.com0tag:blogger.com,1999:blog-3975429995438031732.post-79396047446425445862011-01-20T06:53:00.003-05:002011-02-01T17:02:11.912-05:00Registration for March 5 Celaic Disease ConferenceThere is still space in all age groups for the March 5 Celiac Disease Conference. Please fill out the registration form below and send it in.Theresehttp://www.blogger.com/profile/05345077064936460568noreply@blogger.com0tag:blogger.com,1999:blog-3975429995438031732.post-3309875187433800352011-01-10T21:38:00.002-05:002011-01-10T21:42:01.966-05:00Registration form for Akron Celiac Disease Conference March 5, 2011Registration Form<br />Pre-registration is required. Space is limited.<br /><br /><br />Registration Form<br /><br />Celiac Disease Conference and Vendor Fair<br />Saturday March 5, 2011<br /><br /><br />Saturday March 5, 2011<br />Adult Program, Teen Program, School Age Children Program<br />11:00 noon – 4:30 p.m.<br />Parent and Child Program for Preschoolers and Young Children<br />11:00 noon – 3:00 p.m.<br /><br /><br />Family Name ___________________________________<br /><br />$ 15 for each adult and <br />$10 for each child. <br />Make Checks payable to: Celiac Disease Conference CSA 111<br /><br />Adults___, <br />Teens (13-adult) ____ <br />School age (6-12) _____<br />Preschoolers _____<br />(Every preschool child must be accompanied by an adult for the entirety of their program )<br /><br />Total number of family members registering______________<br /><br />Total enclosed $ ___________<br /><br />Please list first names and age groups for each family member below.<br />If you would like a confirmation that your registration has arrived please list your email or phone number clearly below.<br /><br />See you on March 5th!Theresehttp://www.blogger.com/profile/05345077064936460568noreply@blogger.com0tag:blogger.com,1999:blog-3975429995438031732.post-78569676154470346312011-01-10T21:17:00.004-05:002011-01-10T21:36:44.386-05:00Celiac Disease Conference, Akron Children's Hospital March 5, 2011Celiac Disease Conference and Vendor Fair<br />Saturday March 5, 2011<br />Vendor Fair 9:00 - 1:00<br />Speakers and Children's Activities 11:00 - 4:30<br /><br />Keynote Speaker: Dr. Alessio Fasano <br />of the University of Maryland Center for Celiac Research<br /><br />Additional speakers include:<br />Dr. Cydney Fenton of Akron Children’s Hospital Diabetes and Endocrinology<br />Dr. Costas Kefalas, Akron Digestive Disease Consultants <br />Dietitian Trisha Lyons, Celiac Dietitian of Metro Health<br />Pharmacist Steve Plogsted, Nationwide Children’s Hospital<br /><br /> At this event we will have<br />Adult, Teen, Children, and Parent and Tot programs <br />We will begin the day with a vendor fair. <br /><br />Children’s programs will include hands on activities such as a Bake and Take with Food-Tek, and animals that eat gluten free from the Akron Zoo.<br /><br />The event does not include lunch. We did this to keep cost at a mimimun. Please plan accordingly. The cafeteria at Akron Children's will have both a gluten free entree and a gluten free salad special available for purchase the day of the event. There will also be vendor samples available during the vendor fair portion of the event. <br /><br /><br />Sponsored by<br />The Celiac Support Groups of Northeast Ohio<br /> <br />Hosted by:<br />Akron Celiac Support Group &<br />Akron Children’s Hospital Center for Diabetes & Endocrinology <br /> <br /><br />Akron Children’s Hospital – Sherman Auditorium<br />1 Perkins Square<br />Akron, OH <br /><br />Registration form and information will be available on the internet at <br />Neoceliacs.blogspot.com <br />Through Akron Children’s Hospital Center for Diabetes and Endocrinology Office _ attention K. Smith<br />or by contacting Therese Semonin at tsemonin1@neo.rr.comTheresehttp://www.blogger.com/profile/05345077064936460568noreply@blogger.com0tag:blogger.com,1999:blog-3975429995438031732.post-38217741396466918222011-01-07T10:53:00.000-05:002011-01-07T11:02:03.113-05:00support meeting Sunday January 9Akron Celiac Support Group meeting this Sunday 2-4 @ Akron Children,s Hospital. Planning and prep for our March 5 conference. Also we need kids, teens and adults, ages 8 and up to fill. Out surveys for a national research project on Celiac. Get your conference registrations in.Theresehttp://www.blogger.com/profile/05345077064936460568noreply@blogger.com0tag:blogger.com,1999:blog-3975429995438031732.post-10139166252812470082011-01-03T18:43:00.004-05:002011-01-10T21:17:01.721-05:00Northeast Ohio Celiac Disease Conference<span style="color:#006600;"><span style="font-size:180%;">Celiac Disease Conference and Vendor Fair</span><br /></span><span style="font-size:180%;color:#006600;">Saturday March 5, 2011<br /></span><br /><span style="font-size:180%;">Keynote Speaker: Dr. Alessio Fasano<br /></span>of the University of Maryland Center for Celiac Research<br /><br />Additional speakers include:<br /><span style="font-size:130%;">Dr. Costas Kefalas, Akron Digestive Disease Consultants,<br />Dietitian Trisha Lyons, Celiac Dietitian of Metro Health<br />Pharmacist Steve Plogsted, Nationwide Children’s Hospital<br />Dr. Cydney Fenton, Akron Children’s Hospital Diabetes and Endocrinology<br /><br /></span>At this event we will have<br />adult, teen, children and parent and tot programs and a small vendor fair.<br /><br />Sponsored by<br />The Celiac Support Groups of Northeast Ohio<br /><br />Hosted by:<br />Akron Celiac Support Group &<br />Akron Children’s Hospital Center for Diabetes & Endocrinology<br /><br />Akron Children’s Hospital – Sherman Auditorium<br />Bowery Street<br />Akron, OH<br /><br />Registration information will be available at the Support group blog at neoceliacs.blogspot.com, or by contacting Therese Semonin at <a href="mailto:tsemonin1@neo.rr.com">tsemonin1@neo.rr.com</a> and requesting a registration form.<br />You may fill in and mail the registration form below.<br /><br />Registration is limited. Registration begins on January 4, 2011<br /><br />Celiac Disease Conference and Gluten-Free Vendor Fair<br />Saturday March 5, 2011 <br />9 a.m. - 4:30 p.m.<br /><br />Sponsored by the combined Celiac Support Groups of Northeast Ohio<br />Hosted by Akron Celiac Support Group & Akron Children’s Hospital Endocrinology and Diabetes Department<br /><br />Akron Children’s Hospital, Main Building, Sherman Auditorium and Timeline Lobby<br />1 Perkins Square, Akron, OH<br /><br />Programs for adults, teens and school-age children are from 11:00 a.m. to 4:30 p.m. Programs for preschoolers and their parents/guardians are from 11:00 a.m. to 2:30 p.m.<br /><br />Space is limited and you must pre-register. To keep costs down, we will not be providing meals during the conference. However, you are free to enjoy gluten-free samples from numerous vendors. There is also a cafeteria adjacentto the auditorium. We are trying to make arrangements with them in advance to have a gluten free option available for lunch on that day.<br /><br />Registration cost is $15 per adult and $10 per child. Discounts are available for those with financial need. Every preschool child must be accompanied by an adult for the entirety of the program. The adult caring for the preschooler is included in the child’s registration fee of $10.<br /><br />For more information contact:<br />Therese Semonin<br />Chapter 111 Celiac Sprue Association<br />tsemonin1@neo.rr.com<br />www.neoceliacs.blogspot.com<br />330-608-8436<br /><br />------------_------------_-------------_-------------<br /><br />Registration Form<br />Family name _____________________________________________________<br />Adults’ names ____________________________________________________<br />Teens’ names (13-18 yrs) ___________________________________________<br />School-agers’ names (6-12 yrs) _______________________________________<br />Preschoolers’ names (3-5 yrs)________________________________________<br /><br />Number of adults _______ @ $15 each $________<br />Number teens or school-agers _______ @ $10 each $________<br />Number of preschoolers _______ @ $10 each $________<br /><br />Total registration fees $ ________<br /><br />For confirmation, list your email or phone number_________________________<br /><br />*Teens: please wear, or bring appropriate clothing for an outdoor activity that will take about 1 hour. This activity will be held rain or shine, warm or cold, and should be great fun.<br /><br />Make checks payable to Celiac Disease Conference CSA 111.<br />Detach and return this registration form to:<br /><br />Celiac Disease Conference Attn: Esther<br />640 Fairhill Drive<br />Akron, Ohio 44313<br /><br />---------------------------------_--------------------------------Theresehttp://www.blogger.com/profile/05345077064936460568noreply@blogger.com0tag:blogger.com,1999:blog-3975429995438031732.post-55050849981159939042009-09-24T19:26:00.001-04:002009-09-24T19:26:57.914-04:00Tommy's Pizza Gluten Free Buffet, Oct 18The Northeast Ohio Celiac Support Group<br />&<br />Tommy's Pizza Chicken Ribs<br />Have joined forces to plan a<br />GLUTEN-FREE BUFFET!<br />Date: Sunday October 18, 2009<br /><br />Time: Choice of 2 Seatings: 2pm or 5 pm.<br /><br />Place: Tommy’s Pizza Chicken Ribs, <a title="blocked::http://www.tommyspcr.com/" href="http://www.tommyspcr.com/">http://www.tommyspcr.com</a><br />34441 Center Ridge North Ridgeville, OH 44039<br />(Corner of Center Ridge & Pitts)<br /><br />Guest Vendor: Bake My Day Bakery<br /><br />Door Prizes from: Tommy’s, Bake My Day Bakery & Gluten Free Living Magazine<br /><br />RSVP by Monday Oct 12th (limited seating) to:<br />Laurie @ <a title="blocked::mailto:lpsammon@cox.net" href="mailto:lpsammon@cox.net">lpsammon@cox.net</a><br />Include: Choice of Seating Time, Name, City, Email, Number Eating Gluten Free, Total Number in Party.<br /><br />Gluten Free Buffet Menu:<br />Pizza & Chicken Wings (assorted)/ Soup & Salad Buffet<br />Fried Chicken/ Baked Chicken / BBQ Chicken/Jo Jo Potatoes Dessert Pizza<br />Non-alcoholic beverages included: pop, iced tea, & coffee<br /><br />GF beer & wine available at additional cost.<br /><br />Take & Bake Pizzas will also be offered for purchase<br /><br />Regular Menu:<br />Available for those not requiring GF food.<br />(check out website for menu)<br />GF Buffet Price: $14.99 + tax/tip per person.<br />Kid’s GF Buffet: Ages 3-9 is $7.99 and 10 and over is full price.<br /><br />Individuals will be billed separately or as a family.<br /><br />Bring your family and friends!<br /><br />Come and enjoy a delicious gluten-free buffet which<br />you simply won't find at other local restaurants!<br /><br />Directions to Tommy's: <a title="blocked::http://www.mapquest.com/" href="http://www.mapquest.com/" target="_blank">www.mapquest.com</a><br />34441 Center Ridge, N. Ridgeville 44039<br /><br />Hope to see you there!<br /><br /><a title="blocked::http://www.geocities.com/clevelandceliac" href="http://www.geocities.com/clevelandceliac">http://www.geocities.com/clevelandceliac</a><br />(Please refer to our website periodically for updates and news)Theresehttp://www.blogger.com/profile/05345077064936460568noreply@blogger.com0tag:blogger.com,1999:blog-3975429995438031732.post-61922057264268606582009-09-23T17:07:00.002-04:002009-09-23T17:12:38.505-04:00Fall EventsHello Fellow Celiacs,<div><br /></div><div>There are several exciting things happening the next couple of months.</div><div><br /></div><div>Saturday, October 10 there will be a gluten free tasting at Mustard Seed Market, both locations, Montrose and Solon.</div><div><br /></div><div>Sunday October 12, we will skip our October meeting in hopes that you can attend one of the other events happening in our area.</div><div><br /></div><div>October 31-November 2, The national Celiac Sprue Association Conference is taking place in Erie PA. It is just a stone's throw away.</div><div><br /></div><div>Saturday November 7 or 8, (which ever day is Saturday) the Columbus Celiac Conference and Gluten Free Vendor Fair.</div><div><br /></div><div><br /></div>Theresehttp://www.blogger.com/profile/05345077064936460568noreply@blogger.com0tag:blogger.com,1999:blog-3975429995438031732.post-91240807710952587072009-09-12T06:35:00.002-04:002009-09-12T06:37:39.583-04:00Sunday, September 13 is Celiac Awareness DaySunday September 13 is Celiac Awareness Day. The Akron Celiac Support Group will be meeting at Akron Children's Hospital at 2pm in Classrom D. We have wonderful bakery samples and coupons to share. We have a special activity for the kids. Hope to see you there.Theresehttp://www.blogger.com/profile/05345077064936460568noreply@blogger.com0tag:blogger.com,1999:blog-3975429995438031732.post-16452833873756536932009-09-10T15:47:00.002-04:002009-09-10T15:50:39.109-04:00Back in the Swing of ThingsHello Fellow Celiacs,<br /><br />We are back into having regular meetings at Akron Children's Hospital for the Celiac Families. We will meet this Sunday September 10 from 2-4 in classroom D on the third floor.<br />Dietitian Kelly Reed will be speaking. We have a new baker bringing samples and some coupons from other companies to share. There is a special activity for the kids this meeting. Hope to see you there!<br />ThereseTheresehttp://www.blogger.com/profile/05345077064936460568noreply@blogger.com0tag:blogger.com,1999:blog-3975429995438031732.post-4835045065592409912009-07-03T21:29:00.002-04:002009-07-03T21:32:22.210-04:00Italian Fest has Gluten Free Pasta!Thanks to Dennis Altieri, families with Celiac can attend the Italian Fest at Lock 3 downtown and enjoy the pasta! Check out the Sons of Italy Lodge 685!<br /><br />The Sons of Italy Lodge 685 will be offering Gluten Free Rotini in addition to Penne, Cavatelli and Meatball Subs at the Italian Fest July 10-12 Downtown Akron. I'm trying to get the word out as many places as possible. I only know of your support group. If you know others close by, please forward. Now Celiacs will be able to enjoy the Fest and have their pasta too!Theresehttp://www.blogger.com/profile/05345077064936460568noreply@blogger.com0tag:blogger.com,1999:blog-3975429995438031732.post-46607811210774797582009-06-11T12:24:00.001-04:002009-06-11T12:25:19.335-04:00Gluten Free Tasting event Saturday June 13Saturday-June 13, 2009 - Big Event Under a Tent. <br />The Canton Raisin Rack will be offering a gluten-free sampling day under the big top at its "Big Event Under a Tent" in the parking lot outside the Canton store on Saturday, June 13, from 11 a.m. to 4 p.m. The Gluten-free sampling will feature products from Celiac Specialties and Mr. Ritts Bakery. This will be a great time to stock up on gluten free cakes, pies, muffins, brownies, cookies, donut holes, Bread etc., as well as items not readily available in our immediate area ... Contact the Raisin Rack at 330-966-1515 for more information.Theresehttp://www.blogger.com/profile/05345077064936460568noreply@blogger.com0tag:blogger.com,1999:blog-3975429995438031732.post-14793713296181718342009-06-08T12:49:00.003-04:002009-06-08T12:57:11.621-04:00Akron Aeros Outing June 28, 2009<strong>2009 Akron Celiac Support Group, Akron Aeros Outing #2</strong><br /><strong></strong><br />Game is Sunday June 28 at 1:35. Tickets are just $6 per person. With the perfect game coupon tickets will be $ 11. That includes game ticket, a hot dog, chips and a soft drink. Gluten free hot dogs can be ordered.<br /><br />Money must be in by Monday June 15. You can pay at the support group meeting this Sunday June 14 at Akron Children's Hospital.<br /><br />For details call Therese at 330-608-8436 or email at <a href="mailto:tsemonin1@neo.rr.com">tsemonin1@neo.rr.com</a><br /><br />Order form<br />_______<br /><br />Name_________________<br /><br />Number of game only tickets @ $6 each _________ = $__________<br /><br />Number of game tickets with hhot dog specail @$11 each ___________ =$______<br /><br />#Regular ___________ #Gluten Free ____________<br /><br />Total enclosed $_____________<br /><br />Make checks payable to Akron Celiac Support Group<br /><br />Mail to Celiac Support Group/ Akron Aeros Outing<br />640 Fairhill Drive<br />Akron, Ohio 44313Theresehttp://www.blogger.com/profile/05345077064936460568noreply@blogger.com0tag:blogger.com,1999:blog-3975429995438031732.post-83279364234224775662009-06-05T10:40:00.001-04:002009-06-05T10:42:46.963-04:00Updated information on gluten and medicationsFrom the desk of Pharmacist Steve Plogsted<br /><br />Over the past few months a number of drug companies have been telling people that some of the drugs that they manufacture contain gluten. When I investigated their claims it appears that the reason they are blatantly claiming that their drugs are contaminated is because they have used a sugar alcohol as an excipient. <br /><br />Sugar alcohols are not truly sugars or alcohols rather they are carbohydrates that provide a source of calories. The sugar alcohols are naturally found in a number of fruits and vegetables and may be extracted from many sources including any starch, including wheat. During the manufacturing process they are completely refined leaving behind no gluten proteins similar to making table sugar. The mostly widely used sugar alcohols used in prescription drug manufacturing are mannitol and xylitol. Both of the products are used either as sweeteners in liquid drug products or as bulking agents in the solid dosage forms.<br /><br />The sugar alcohols are used in many diabetic products as well as in many health foods such as nutrition bars. Any person who consumes one of the sugar alcohols in significant quantities can experience gastrointestinal disturbances and diarrhea which may mimic symptoms celiac patients may suffer after being exposed to gluten.<br /><br />National celiac organizations such as the Gluten Intolerance Group of North America® consider mannitol to be safe for use in celiac patients. Additionally, if you go to the Celiac.Com website dated 11/29/07 you will find a list of items safe for the celiac patient to consume. On that list you will also find both mannitol and xylitol as well as the following sugar alcohols sorbitol, malitol, lactilol and isomalt.<br /><br />What does this means for the celiac patient? If you happen to contact a drug company for information and you are told that a drug contains gluten you really need to push them to tell you which excipient in that drug product is considered the source of the gluten contamination. If it turns out to be one sugar alcohols you may wish to re-evaluate their response. While it is always up to the celiac patient to determine whether a product is safe for them, the prevailing literature continues to suggest that these sugar alcohols are safe for use.<br /><br />If you have any additional questions please contact me through the glutenfreedrugs.com website.<br /><br />Steven Plogsted BS, PharmD<br />Clinical Pharmacy Specialist<br />Nutrition Support Service<br />Nationwide Children's Hospital<br />700 Children's Drive<br />Columbus, OH 43205Theresehttp://www.blogger.com/profile/05345077064936460568noreply@blogger.com0tag:blogger.com,1999:blog-3975429995438031732.post-69272750060047185242009-05-25T12:34:00.002-04:002009-05-25T12:38:52.742-04:00The Akron Area Celiac Support Group email list has been eaten by my computerDear friends and members of the Akron Celiac Support Group. My computer did a major crash and burn. It is up and running again, but much of what was on the computer is lost. The major loss was the email address book that I used to let you all know about upcoming events.<br /><br />If you would like to get reminder emails about Akron area events, and also events that other support groups in Northeast Ohio are holding, please email Therese at <a href="mailto:tsemonin1@neo.rr.com">tsemonin1@neo.rr.com</a> Put your email address in the body of you email. I am trying to rebuild the address book.Theresehttp://www.blogger.com/profile/05345077064936460568noreply@blogger.com0tag:blogger.com,1999:blog-3975429995438031732.post-83972330345521079672009-05-25T12:29:00.003-04:002009-05-25T12:39:49.339-04:00Akron Aeros Outing June 28We have a second Akron Aeros outing planned for Sunday June 28, 2009. I have tickets held but not yet purchased. All orders must be in and paid for by the June 14th meeting. Tickets will be at the will call window the day of the game.<br /><br /><br /><br />For this game tickets are $6 each. If you would you may also purchase a "Perfect Game Coupon" for an additional $5 per person. This entitles you to a soft drink, chips and a hot dog(gluten free available if ordered in advance)<br /><br /><br /><br />For details emai or call Therese at <a href="mailto:tsemonin1@neo.rr.com">tsemonin1@neo.rr.com</a> or 330-608-8436Theresehttp://www.blogger.com/profile/05345077064936460568noreply@blogger.com0tag:blogger.com,1999:blog-3975429995438031732.post-42143733413155662652009-05-25T12:27:00.001-04:002009-05-25T12:29:01.234-04:00Altieri's special for this weekFree Pizza & Cannoli!!<br /><br />(Well the canonolis can be for our families)<br /><br />Tuesday, May26, 2009 – Monday, June 1, 2009<br />Buy a 16” Pizza and get a 12” Pizza FREE or a Gluten Free Pizza FREE!!*<br />* Limit 2 Free 12” Pizzas or 2 Gluten Free Pizzas of equal or lesser topped pizza with this email. One email per household.<br /> <br />Buy a Cannoli and get a FREE Cannoli!!*<br />* Limit 3 Free Cannolis with this email. One email per household.<br /> <br />FOX 8 Akron-Canton Annual HOT LIST Contest results are in - Altieri's Pizza 3rd place! Thank you for your support!!<br /> <br />May’s Specialty Pizza of the Month – Chicken Fajita Pizza: Our Ranchero Sauce topped with Cheddar and Provolone Cheeses, Seasoned Chicken, Mexican Spiced Roasted Peppers and Roasted Onions – Olé!<br /> 9” – 7.50 12” – 11.50 16” – 17.75 <br />Deep Dish – 17.50 9” GF – 8.50<br /> <br />June’s Specialty Pizza of the Month – Baked Spaghetti Pizza: Spaghettini tossed with Vodka Sauce and topped with Meat Sauce, Provolone and Fontinella Cheeses. Not Available in Gluten Free.<br /> 9” – 7.50 12” – 11.50 16” – 17.75 <br />Deep Dish – 17.50 9” GF – 8.50<br /><br />Holidays, Graduation Parties, Birthdays, Reunions, Neighborhood Parties? Call us to make your day easier and spend more time with your guests! 10% discount on all orders over $100.00.<br /> <br />Altieri's Pizza Stow – 330.686.6860 <a href="http://www.altierispizza.com/" rel="nofollow" target="_blank">www.altierispizza.com</a><br />Mon – Thus 3-10<br />Fri & Sat 11-11<br />Sunday 11-10Theresehttp://www.blogger.com/profile/05345077064936460568noreply@blogger.com0